My son was bitten by a tick at his preschool. I saw the tick bite and a red rash around it and took a picture. I went to our local doctor's office and they offered the standard test which I know to be inaccurate 70% of the time. They refused to authorize a lab order for IGeneX, the one lab that does an accurate test. Why???
I went back to the clinic that treated me (effectively) and got the right test ordered. It took weeks to navigate through all these doctors offices and appointments just to get a good test done. It took several more weeks to get results. In the mean time, we started my son on amoxicillin. The results came in and I was able to get an appointment (a week later!) to find out he was positive for Lyme. I was not surprised. He will be on the antibiotic for another month or two. And he is taking vitamin D, which he is low on, as well as probiotics to keep his digestive system in balance.
I had to fight tooth and nail to get my son two basic things: a good test, and a proper course of antibiotics. Why should it be so hard to get basics like this? This was an early diagnosis, not the prolonged "Chronic Lyme disease." It is well known that the course of treatment is about 6 weeks. But our doctor wanted to give him ten days of antibiotics. She also did not want to authorize an effective test.
Without a complete cycle of treatment, this child would have recurring chronic Lyme disease his whole life. That means disrupted cognitive ability, disrupted sleep, possibly depressions and anxiety, pain...why would any medical establishment wish to gamble with a person's life by not fully addressing this possibility?
While Igenex lab is preferred for Lyme disease testing you can still receive Igenex testing and receive a negative for Lyme disease yet still have the disease. Same with co-infection testing. Yet is still always important to test for co-infections when doing Lyme testing. Lyme disease is a clinical diagnosis - it should be made based on symptoms and not just testing and preferably be diagnosed by a Lyme Literate MD that sees Lyme patients all day long. You can find a Lyme literate MD by sending an email to ILADS.org
ReplyDeleteHere is a link to reasons why you could have Lyme disease yet still test negative for it. http://www.canlyme.com/seronegreasons.html
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