This is from Lyme advocate Carl Tuttle who has an active petition on Change.org. I received this message today:
Yesterday’s Boston Globe article follows in the footsteps of the recent CDC announcement that 300,000 cases of Lyme per year are more likely a better estimate than the previous 30,000. The CDC has long known and admitted that their numbers were off by as much as ten. Striking fear in the public would generate acceptance for a new Lyme vaccine currently under development in the UK by Baxter Pharmaceuticals as the previous LYMErix vaccine was a failure.
http://www.glopc.com/lymerix-vaccine-may-cause-adverse-side-effects/
3 deaths from heart inflammation caused by Lyme
http://www.bostonglobe.com/lifestyle/health-wellness/2013/12/12/three-deaths-reported-from-heart-inflammation-caused-lyme-disease/bRqzfHYfThiRXmQ0kuqr6L/story.html
By Beth Daley | GLOBE CORRESPONDENT DECEMBER 12, 2013
Excerpt from the Boston Globe article:
“Stanley Plotkin, emeritus professor of pediatrics at the University of Pennsylvania and a vaccine expert, said the report shows the urgent need for a vaccine against Lyme.
His son, Alec, collapsed in August 2005 while walking his dog in the suburbs of Philadelphia. An alert doctor at the hospital he was brought to realized he had Lyme and successfully treated him with antibiotics and a pacemaker.
“I think it is unconscionable and a discredit to all parties — public health, manufacturers, Lyme activists — that no Lyme vaccine is available to humans while there is one for dogs,” he wrote in an e-mail Thursday.”
From the petition site:
Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF
https://www.change.org/petitions/the-u-s-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf
It’s all about the VACCINE
It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model.
The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway.
Please continue to forward this petition.
Thank you for your continued support.
Carl Tuttle
33 David Dr
Hudson, NH 03051
Friday, December 13, 2013
Thursday, June 9, 2011
Use this site
Please use this site to get some basic information. Do not get scared. Get vigilant. Get pro-active. Your health and that of your family is in your hands. Urge your doctors to get Lyme literate. Tell them it is important to you. And investigate the basic resources here. Let me know if you have questions or have a good resource to share!
My Son
My son was bitten by a tick at his preschool. I saw the tick bite and a red rash around it and took a picture. I went to our local doctor's office and they offered the standard test which I know to be inaccurate 70% of the time. They refused to authorize a lab order for IGeneX, the one lab that does an accurate test. Why???
I went back to the clinic that treated me (effectively) and got the right test ordered. It took weeks to navigate through all these doctors offices and appointments just to get a good test done. It took several more weeks to get results. In the mean time, we started my son on amoxicillin. The results came in and I was able to get an appointment (a week later!) to find out he was positive for Lyme. I was not surprised. He will be on the antibiotic for another month or two. And he is taking vitamin D, which he is low on, as well as probiotics to keep his digestive system in balance.
I had to fight tooth and nail to get my son two basic things: a good test, and a proper course of antibiotics. Why should it be so hard to get basics like this? This was an early diagnosis, not the prolonged "Chronic Lyme disease." It is well known that the course of treatment is about 6 weeks. But our doctor wanted to give him ten days of antibiotics. She also did not want to authorize an effective test.
Without a complete cycle of treatment, this child would have recurring chronic Lyme disease his whole life. That means disrupted cognitive ability, disrupted sleep, possibly depressions and anxiety, pain...why would any medical establishment wish to gamble with a person's life by not fully addressing this possibility?
I went back to the clinic that treated me (effectively) and got the right test ordered. It took weeks to navigate through all these doctors offices and appointments just to get a good test done. It took several more weeks to get results. In the mean time, we started my son on amoxicillin. The results came in and I was able to get an appointment (a week later!) to find out he was positive for Lyme. I was not surprised. He will be on the antibiotic for another month or two. And he is taking vitamin D, which he is low on, as well as probiotics to keep his digestive system in balance.
I had to fight tooth and nail to get my son two basic things: a good test, and a proper course of antibiotics. Why should it be so hard to get basics like this? This was an early diagnosis, not the prolonged "Chronic Lyme disease." It is well known that the course of treatment is about 6 weeks. But our doctor wanted to give him ten days of antibiotics. She also did not want to authorize an effective test.
Without a complete cycle of treatment, this child would have recurring chronic Lyme disease his whole life. That means disrupted cognitive ability, disrupted sleep, possibly depressions and anxiety, pain...why would any medical establishment wish to gamble with a person's life by not fully addressing this possibility?
My Story
About five years ago I was diagnosed with Lyme disease, after having it for five years without knowing. I underwent two years of the best treatment, at one of the best clinics, located in Sonoma County. During treatment and since, I have made it my business to learn everything I could about the disease and fully understand the treatment I was getting. I am symptom free for more than three years.
Unfortunately, I hear many stories about people who are not as lucky as I was. They suffer endless treatments (ten years...more?) and get little relief. There is just a pathetic lack of good information sharing among the medical community. What I have found is a strong resistance in the medical community to come out of the stone age and educate themselves on how to treat this infection effectively.
The truth is that the Center for Disease Control (CDC) lists Lyme disease as one of the fastest growing epidemics in the world.
The truth is that they estimate 10 times more cases occur than are reported.
The truth is that only about 40% of people who get Lyme disease recall having the bulls-eye rash, or getting a tick bite. Diagnosis must be done clinically, that means doctors in offices everywhere must learn to spot the collection of symptoms and diagnose based on symptoms.
The truth is the usual test doctors order is wrong about 40-70% of the time.
The truth is this is an epidemic and until the medical community comes out of their fog, we as the general public must usher ourselves through the basics to get appropriate care. If we do not do so, we will suffer the consequences.
The truth is Lyme disease has sever consequences: it is a disabling, horrible disease, and no one should have to, or needs to suffer with it.
Unfortunately, I hear many stories about people who are not as lucky as I was. They suffer endless treatments (ten years...more?) and get little relief. There is just a pathetic lack of good information sharing among the medical community. What I have found is a strong resistance in the medical community to come out of the stone age and educate themselves on how to treat this infection effectively.
The truth is that the Center for Disease Control (CDC) lists Lyme disease as one of the fastest growing epidemics in the world.
The truth is that they estimate 10 times more cases occur than are reported.
The truth is that only about 40% of people who get Lyme disease recall having the bulls-eye rash, or getting a tick bite. Diagnosis must be done clinically, that means doctors in offices everywhere must learn to spot the collection of symptoms and diagnose based on symptoms.
The truth is the usual test doctors order is wrong about 40-70% of the time.
The truth is this is an epidemic and until the medical community comes out of their fog, we as the general public must usher ourselves through the basics to get appropriate care. If we do not do so, we will suffer the consequences.
The truth is Lyme disease has sever consequences: it is a disabling, horrible disease, and no one should have to, or needs to suffer with it.
Subscribe to:
Comments (Atom)